Tomorrow we will be starting the final phase before we are in the maintenance period. This phase will last 60 days and is the most intense we have had since the beginning. We start tomorrow with a spinal tap, back on the steroid, and several other drugs. Troy will be getting 18 does of drugs a day and his face will get plump again. He will be looking nice and chubby for Christmas. Good thing he looks great with chubby cheeks. We just want to get through these next few months and make it to the ever coveted maintenance phase. That will be a miracle in itself. Cars continues to be Troy’s obsession and every time we go to the doctor he gets to pick a toy from the closet or treasure chest and what he gets just about every time, a car. He truly loves them all and never gets tired of playing cars. One of the child life specialist got Troy started with a bead necklace that shows every time Troy has had a surgery, blood transfusion, chemo, days in the hospital, pokes, access of the port, and several other things. The necklace is already full and I can’t imagine how long it will be when we are done with all this. Troy wasn’t very interested in the beads so Abby finished it for him but they offer so many great programs for these kids. Any little thing helps in my eyes. Thanks to everyone for your support.Sunday, October 14, 2007
START OF FINAL PHASE
Tomorrow we will be starting the final phase before we are in the maintenance period. This phase will last 60 days and is the most intense we have had since the beginning. We start tomorrow with a spinal tap, back on the steroid, and several other drugs. Troy will be getting 18 does of drugs a day and his face will get plump again. He will be looking nice and chubby for Christmas. Good thing he looks great with chubby cheeks. We just want to get through these next few months and make it to the ever coveted maintenance phase. That will be a miracle in itself. Cars continues to be Troy’s obsession and every time we go to the doctor he gets to pick a toy from the closet or treasure chest and what he gets just about every time, a car. He truly loves them all and never gets tired of playing cars. One of the child life specialist got Troy started with a bead necklace that shows every time Troy has had a surgery, blood transfusion, chemo, days in the hospital, pokes, access of the port, and several other things. The necklace is already full and I can’t imagine how long it will be when we are done with all this. Troy wasn’t very interested in the beads so Abby finished it for him but they offer so many great programs for these kids. Any little thing helps in my eyes. Thanks to everyone for your support.
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Just checking up on Troy to see how he is doing. We will continue to keep him in our prayers. If you ever have anyone ask what they can do to help, the london run's is asking for help with water stations for the runs and ride portions. Give them my name and number and I will get them the information. Ray Turley 480 888-7660
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